Modern technology and prenatal testing have made it possible to know more about babies before they are born than ever before. But when the results of these tests are not positive news, parents are faced with a difficult decision – carrying the child to term or terminating the pregnancy.
Parents who decide to continue their pregnancies are not alone. Hospice Care Network offers a Perinatal Hospice Program designed to provide comprehensive support from the time of diagnosis through the birth and into the postpartum period.
Hospice Care Network can help by:
- Working with parents and other health care providers to create a birth plan that includes the family’s preferences for interventions for the baby and involvement of the family
- Assisting in ways to celebrate and welcome the baby
- Addressing the emotional needs and concerns of parents and siblings
- Providing comfort care for the baby, including medications, equipment and physical therapy
- Planning final arrangements, memorial services and goodbyes
- Providing bereavement support for all family members and other caregivers
HIPAA - Health Insurance Portability and Accountability Act (1996) creates national standards to protect individuals’ medical records and other personal health information. This law was enacted to protect patient privacy and improve the security, accuracy and integrity of the electronic transmission of health information. HIPAA provisions affect providers (that means Hospice Care Network), payers, and all other entities that share in the exchange of health information. This new law requires that a privacy notice be given to all patients and makes it illegal to release health information to inappropriate parties, or fail to adequately protect health information from release. If violated, civil and criminal penalties can be incurred.